Data saves lives public engagement event: how health data can be used to support research
Date posted: 23rd August 2024
Thursday 12 September, from 6pm to 8:30pm, at Function Suite, Castle Green Hotel, Castle Green Lane, Kendal.
Health leaders in Lancashire and South Cumbria are inviting the public to a session to discuss personal health data and how that data can be used safely and securely to support healthcare research.
Health data is collected every time an individual engages with health services, and it will help to improve patient care, speed up diagnosis and research new treatments. To keep information safe, Lancashire and South Cumbria Integrated Care Board (ICB) uses, among other options, a Secure Data Environment (SDE). Only approved researchers will have access to this and the research projects will be assessed to make sure they meet the criteria to access data within the SDE.
The World Café format allows conversations on data-related topics to take place in a friendly and relaxed environment so that the public can provide their insights into the SDE and how it operates. Research clinicians will be on hand to facilitate the discussions, answer questions and hear thoughts that the public may have.
Vishnu Chandrabalan, director and chief clinical information officer of the Lancashire and South Cumbria Secure Data Environment, said: “Data plays an incredibly important role in how we plan, deliver and improve healthcare services, and ultimately helps to save lives. We can harness this power to carry out life-changing research helping us better understand diseases and their management.
“We will take many precautions to protect the privacy of individuals; however, we understand that the public will have many questions about how we keep their data safe and what we do to separate their identity from the data, how we keep their personal information safe, and what is the process of “de-identification”, and these sessions will help answer them.
“This is our second event following last month’s successful session in Preston. We are keen to shape the future of healthcare through meaningful conversations and insights with the public.”
The session will take place on Thursday 12 September, from 6pm to 8:30pm, at Castle Green Hotel, Castle Green Lane, Kendal. Secure your free place before Monday 2 September 2024.